The “It’s just stress” go to diagnosis for incompetent doctors & the effect on the patients.

As the title states I want this blog to be something most of you can relate to when going through medical investigations whilst trying to get a diagnosis, or even seeing a new Doctor who doesn’t “believe” your diagnosis.

The way it makes us all feel is just wrong! This is something that needs to change!

I’m writing this as this is something I am currently experiencing whilst in the process of trying to figure out what my body is doing. After 3 days in hospital with intense abdominal cramping, vomiting and non epilepsy seizures(that’s as far as we’ve gotten with that diagnosis is ruling out what it’s not!)….The neurologist had finally arrived to see me, I had seen him once before and he seemed like he was going to be great, but when he came to see me in hospital he was the rudest by far. He couldn’t believe they had me on oxygen or that I would be in hospital for such thing! After completing the 2nd EEG he had ruled out epilepsy…in which my former specialist had already done and had already given him a letter requesting further testing as she believes I have a build up of pressure around the brain. Now you would think a fully qualified neurologist would know that epilepsy isn’t the only cause of seizure activity, I’ve done only a few months of research and know that, however he continued to give me the “Its caused from stress and it’s in your head ” speech that most doctors turn too when they are out of their depth!

I was in shock! I didn’t fight back, I didn’t ask many questions, I was just devastated… I had my hopes up that this great doctor I seen last time was finally going to be seeing how bad my condition has gotten, from 1 every second day, to daily and now 2-4 seizures a day! I was looking forward to him coming and treating me as an inpatient so I wasn’t alone all day whilst having seizures risking my safety at home and that he would be able to test to get answers and treatments…… All that hope and desperation was just gone!!! I was just silent, no words to describe how I felt, besides belittled and infuriated!!! I had put my trust in him only to be disappointed in the biggest way possible. I was discharged with no answer other than stress and no treatment besides “go talk to a Councillor until I can review you in a few months” and feeling like I would never get answers. That I would have to keep living like this with no hope, as he is the only neurologist in the area.

This feeling we get is so wrong, feeling like there’s no hope or that we won’t get answers needs to stop, we need to stop feeling embarrassed because that’s how the doctor who we trusted should be feeling not us! We shouldn’t feel shocked as it happens so often. I’ve had it happen multiple times and been strong but in that moment I lost that strength and lost my conviction to do what was right for me. Shortly after he left I regained my strength and called on my doctors and nurses for direction and their opinions, they too after seeing my seizures first hand all knew he was wrong and told me to see my GP to organize further testing and a second opinion from the nearest city.

I then got my determination and hope back, I realized we need to take back control!

We all need to fight back, to put our foot down, question their reasoning and to be our own advocate! We know our bodies better than they do, not everything will be a “text book case”, we need to do research ourselves, not feel ashamed, as we know they are wrong! I had to do so when I was covered in hives daily and no doctors would listen, I kept getting told “just take an antihistamine and calamine lotion” or that “it was an allergy” It took me seeing 7 different doctors dismissing my pain, constant itching and impacting my life for me to do enough research which took 3 months to then contact a London based doctor who wrote most of the research I could find on Auto immune urticaria, I emailed him back and forth and he emailed me all the tests my doctor needed to do. Out of the 7 doctors, I seen the one I knew who would run tests for me as she was just apologetic for not knowing what it was instead of belittling me. Thankfully I was right and the test result came back positive! Now yet again faced with the issues of these seizures, I seen another GP to organize some further testing and a second opinion after my hospital visit, after once again being belittled for questioning a neurologist who he automatically defended, without listening to me whatsoever and lecturing me on how little I know and how many years both the neurologist and himself had to study and train for. I decided once again that I was not going to let an incompetent doctor stand in my way of further testing, so I argued back to the point I was in tears, even though he kept dismissing my ideas, and even the letter with results from my previous good specialist (unfortunately we moved or I would still be under her care), plus him pulling my husband away whilst I was having an seizure to tell him it’s just stress and he needs to make me understand that! After all the fighting I got through to him well enough that he has organised the MRI I need to give me answers even though it was only to shut me up and said it’s a waste of my money… In which I replied, I will take my chances and if we do all further tests to no result only then will I accept it’s stress that’s causing it as it isn’t a coincidence it started after a brutal massage with neck manipulation and that I can even bring on a seizure from simply looking up or pressing a certain part in my neck (he didn’t want to hear a bar of it). He even suggested that I should just go back to my previous specialist which I ended up sending her an email and will have her CC’d in on my results. But in the end, I won because I stood up and fought for further testing and hope it will show him that I like many others aren’t textbook and need to be heard, listened to, acknowledged and shown compassion!!! I hope I help him to become a better Doctor so he can save more lives, through doing those simple things!

Although the illnesses we are dealing with already make us feel weak we need to find the strength to fight back, teach the doctors that not all of us are text book cases, that they don’t know EVERYTHING, that they need to listen and show compassion instead of arrogance! We need to stop feeling ashamed, belittled and wrong because that’s how they should be feeling for mistreating us.. their patients!

I am not in anyway stating stress isn’t a cause for some illnesses and it is most definitely a trigger in almost all illnesses in which the two should never be confused! But until all other testing is done to rule out everything else it should never be the “go to” diagnosis for doctors, that is just lazy and incompetent and could cost so many people their lives via misdiagnosis and suicides. I hear too many stories of others waiting years for a diagnosis, not wanting to go to the doctors due to how it makes them feel shamed, too many peoples lives on hold because they can’t do what they used to but have no answers… And too many people that give up on life as they don’t feel like they can go on living in daily pain with no answers! This needs to stop, and I hope it stops here because we stop feeling the shame and belittlement and start fighting for our rights, start teaching these doctors one by one that they HAVE to listen to do their jobs RIGHT! I’m hoping I can help you to find the strength you need to do so, because this world won’t change, this cycle won’t change until we all do our part! So let us all start fighting for change, fight to be heard and treated as human beings!

As always I’m here for all of my readers and would love to hear your thoughts and your stories and help you in any way I can. So please feel free to contact me if you are in need of any help or advice, anytime!

#ItsJustStress #Changingtheworld #IncompetentDoctors #TeachingCompassion #InvisibleButStrong

TRYING TO CONCEIVE WITH INVISIBLE ILLNESS

Welcome to my blog about my journey so far with trying to conceive with invisible/chronic illnesses….

My journey started 4 years ago after we got married, I was SOOOOO EXCITED to finally start trying for a baby, a baby I’ve wanted for so long but had decided to hold off trying for until we were married and in more of a financial position. At long last we were FINALLY going to have a baby soon.. well at least that’s what I had thought…

I previously fell pregnant when I was younger several times with my ex but all had ended unfortunately but I was young and it had taken it as it just wasn’t meant to be and he wasn’t the nicest guy so I had told myself I had miscarried for a reason and that this time would be different as I was older, financially stable and married o the love of my life who is the sweetest person you could imagine. Unfortunately things weren’t as I hoped.

I was in my late 20’s but had discovered I have endometriosis a few years prior so once again I had yet another laparoscopy as the first few months of trying nothing had come from it. I really hope I never have to have another laparoscopy as the 1st one in 2013 it had spread throughout my organs, which I had no idea it could do and due to complications I was on bed rest for 12 weeks and gained so much weight and lost my metabolism so had to say goodbye to being my old 58kg size 8 perfect body as I was now a size 12 with 5 horrible scars and couldn’t lose the weight regardless of what I tried. My next surgery in 2016 was better besides the medical staff issues… I woke up after I had my surgery and was told by my Fertility specialist/surgeon that my tubes were clear, all endo was removed and that we were just now waiting on biopsy results from what was removed, unfortunately for me he then went on holidays for several weeks without doing his paperwork and which meant no medicare refund until he returned (which wasn’t the issue) but he wrote in his entry that no Endo was found or removed??? I couldn’t believe it when I had my next appointment and he had said that, I was roppible that all was forgotten, did he remove what he had previously seen and shown me on scans? The chocolate cysts were they gone? Did he write about the wrong patient? So I made a complaint and changed fertility specialists as anyone would do!

At this point we were now at the 6 month mark with no positive pregnancy test, so we decided to try getting some help, firstly with just the fertility specialist monitoring my bloods every second day along with those horrible internal ultrasounds to check when I was going to ovulate so we new when to “try..” after a few unsuccessful months we then tried medication to assist… hormones!!! Clomid was the first point of call to help create more “targets” for the sperm (great analogy from the fertility specialist) for those of you who have taken Clomid my heart goes out to you!

Clomid, whist it did it’s job of creating 2-3 targets a month for the 8 months we had tried it all up, I have to say the side effects were horrendous! Talk about bloating, cramping, headaches, nausea, becoming a hormonal witch to my poor husband, food cravings and aversions… the amount of months the side effects made me believe I had to be pregnant was probably the hardest when finding out I wasn’t , it broke my heart each month, I was putting my body through all this and yet nothing!! There was a month that I was even late, ended in a heavy cycle to the point they thought I may of had a chemical pregnancy but no positive test to confirm either way only negatives. The side effects were crazy as not only did it give me side effects, it made all my daily symptoms worse!! talk about having a constant flare up, it’s an understatement!

After so much heart ache we decided to try IUI’s or more commonly known as artificial insemination, This also meant more hormones then previously! I was having to inject myself daily with GONAL F to help get more “targets” and then inject myself in the stomach once again with HCG to trigger ovulation. I have such a fear of needles this was horrible to do, I did get my husband to do it but it seemed to hurt moreso so I stood up to the plate and did it myself, unfortunately no luck yet again! More heart break, break downs and nights of endless tears, I lost all hope. I was feeling horrible from both side effects and symptoms flared beyond belief.. I was a mess, all of these things going wrong whilst still working 12 hours a day, 6 days a week. So we decided to take a break!

Once again we tried naturally once we were ready, but nothing again, so we decided to do one last round of IUI, my specialist was on holiday so I had another lady stand in instead and she tried a different combination by adding a progesterone pesserie to the mix of all other hormones the same as last. This month was by far the worst month of them all, the side effects, the horrific cramps, the works!!!!! I was a week late though and had my hopes up like crazy, I had never been this late before, I thought it all must be worth it, but the tests kept coming up negative until it was without a doubt another unsuccessful month. I was broken, shattered into pieces and decided to no longer focus on trying for a baby and throw myself back into work instead!

This was June last year 2019 that I had given up hope and decided to focus on life instead of on creating a new little life. Little did I know the impact the fertility medication had done to my body, 2 weeks later I ended up with severe chest pains and was short of breath. With my hate of doctors and hospitals I had just planned on going home and sleeping it off. It was 5:30pm so the day was almost finished anyway but my fellow workmates could see how pale I was and how much pain I was in so insisted I was to go to the Doctors across the road. So reluctantly I did, my heart rate was at 140bpm whilst sitting, my oxygen very low at 92%, baffled and worried my doctor ended up calling an ambulance.

After a weekend in hospital and sooo much blood taken, they couldn’t figure out what was wrong with me, my stats were fine … because i was lying in a bed! They released me on the Sunday and after doing some research I found POTS suited all my symptoms and as I couldn’t even walk or stand without falling from the dizziness and shortness of breath but was fine when laying down.I went back to the doctors who did some more tests to find I was right! As POTS is more common in teenagers, pregnant women and those going through menopause, the hormones must of been the trigger, after running a bunch of tests we also discovered I had Coeliac disease (Thankfully only early signs of damage during the colonoscopy & Endoscopy were found along with a polyp that was removed) and a name finally put to another condition I’ve always had which was Hypermobility syndrome. So now I know why I can dislocate joints easily!

Unfortunately due to all the heath issues added on to previous health issues the Doctors have stated that I can no longer use hormones to assist. Well not until they can get the current conditions under control at least…. Which seems to be taking forever!

Fast forward to December 2019, after only trying naturally again after a short break not focusing on ovulation (just taking it as it comes) whilst we finished renovating and sold our house, moved interstate and I finished up work due to more added heath concerns of seizures, we decided we needed a break and went on a cruise!!! Only a short holiday but it fell during the time of ovulation, on the cruise we had a couples massage, I tried fertility accupuncture for the first time (never before due to the fear of needles), I corrected my posture from a health seminar on the cruise which helped my sciatica and knee pain, I was relaxed, I even tried a month of fertility meditation and visualisation. This month I got my first faint POSITIVE pregnancy test!!

I wasn’t surprised as I felt like I just “was” since 3 days past ovulation I had feelings I had never had before, burning nipples daily, vivid crazy dreams, sore tender breasts to the point of having to wear a bra to bed each night, cramping mostly one sided but towards the end it started on both sides, I had cravings for milky drinks… banana smoothies, teas, chocolate milk and yet the smell of food made me dry reach!! This was it I just knew it!!

Fast forward to now, I have booked a doctors appointment but cant get in until next week, after being late and a faint positive I ended up bleeding once again, huge clots like never before, intense cramping 3 days prior to the bleeding which is still hurting but not as bad thankfully. 2 days of heavy bleeding followed by 3 days of spotting on and off. Too scared to take another test, I have read stories of those who lost one baby and not the other, those who experienced the same symptoms and yet continued on full term after believing they had lost it, and those who unfortunately did lose their little one and miscarried šŸ˜¦ I sit here not knowing as I write this whilst awaiting a scan!

Whilst I believe all stories must have a happy ending, although unknown at this point, I chose to believe that this is a happy ending in the way of I DID CONCEIVE AT LAST!!! With no hormones, just us! I really hope there is a little fighter still holding on inside, I had so many dreams of twins and I myself was a twin but my mum had miscarried and thought she had lost her baby and then later found out I was there and it was my twin she had lost. So until the scan I hold onto hope. Each day is still hard, each time I have a seizure I wonder if that’s effecting my chance of having a healthy baby or is part of the reason I have issues conceiving now, I’m so short of breath when upright I cant run or go for walks to lose weight. There are so many factors and stresses and heart break in my mind, but for now…. I choose to be strong, I choose to be positive, I choose to hold onto hope for now! Whatever the outcome, this whole journey has made me strong!

#Invisiblebutstrong #NeverGiveUp #NeverLoseHope #TryingToConceive #TTC

How it feels to be me!

A day in the life of Chantal

I’m sure most of you who have found your way to this page can relate in some way, or understand more about someone you love who has some of these symptoms either way… here’s a little about what I live with on a daily basis, how I feel and the achievements I make by just completing the day in full!

Each morning I wake up feeling more tired then I did the night before I slept, the bones all creak and squeak as I roll out slowly to ensure I don’t get up to fast so I don’t fall straight back down again from the head spins and racing heart of 120bpm upon standing. I do my normal routine of toilet, brushing (gently because of the constant bleeding gums) I wash my face and take a seat again before getting dressed as by this time my heart rate has already shot up to 130bpm-140bpm. I hope its going to be a good day and focus on the idea it will be repeating my mantra in my head that “Today is going to be a good day” I choose my comfy clothes and get dressed sitting down as I am so dizzy and unbalanced that standing up getting dressed is a disaster waiting to happen. Im glad I can even stand and walk as thats been taken away from these illnesses before…. TWICE!!

I plan out my day, am I going to bake or clean today? Am i going to be able to exercise on the floor or am I not strong enough today? Is it a rest day with netflix whilst my body recovers or can I take my cats out for a play or do puzzles? I set up my day to what I feel is achievable because if I fail at my goals I’m not going to feel any better of it! So each day I set myself challenging but achievable goals. Today my goal was starting a blog site and creating 4 blogs! This is my 4th so can shortly tick that one off!

I have to spend my day mostly seated so my heart rate isn’t high all day as the longer I stand the higher it rises. 3 times a day I check my blood pressure and heart rate 3-4 times each round from lying down to sitting to standing and standing after 2/3 minutes. I document these in order to become medicated for my POTS (postural orthostatic tachycardia syndrome) previously my blood pressure was either high or low so medication wasn’t foreseeable in my future but now its only ever really low so hopefully after this homework from my new neurologist I can get a handle on it with medication.

I cant look up for longer than a second or two as it seems to also bring on my silent seizures along with standing too long, getting up too quick or experiencing strong emotions or stresses. These sometimes give me no warning and I can collapse anywhere but mostly I get pressure through my head, ears like on a plane and through my throat and jaw… then my head feels heavy like a bowling ball and wobbles like a bobble head toy and I cant control it which isn’t great for my neck to say the least. I either feel calm and emotionless during the silent seizure or the worst i’m alert and trapped inside my body. I collapse for 1-3 minutes with no control over my body but yet can hear everything. Its hard not being able to squeeze someones hand, respond, wipe the drool from my mouth, open my eyes or get off the floor! I wake with such strong emotion when I snap out of an episode hyperventilating, crying, disorientated and confused although I was alert during or even calm during!This can happen daily, every other day or once a week, Still awaiting diagnosis and treatment on this. It means I cant drive, so independence is gone as I cant walk to a bus stop or catch a train in case it happens and I fall and hurt myself or collapse on the side of the road.

I spend most of my days struggling with brain fog, the whole walking into a room and not knowing why… or putting clothes in the kitchen bin instead of the laundry basket etc I get lightheaded and sit as much as I need to and stand as much as I can so I dont lose the muscles I still have. I battle the chest pains that mimis a heart attack questioning if I should call an ambulance but don’t and hope that its “just” my costochondritis!

Its all a challenge every last bit from the daily headaches, joint aches and pains, regular strains, sprains, dislocations (I can relocate my jaw and knees without medical assistance now), dizzy spells and chest pains and all the above.

Each time I repeat to myself that I can cope, I am strong, one pain down is one less to go! I remember the great parts of my life.. my husband, family and friends and fur babies. I remember my happiest moments, I remember my future goals to keep me going… the baby I want to have, the children I wish to foster, the courage and hope I want to share to help others and the career I aim to achieve. All of this helps me get through, along with my best friend my HEAT PACK and PAIN RELIEF (if needed as I try not to take it unless needed) I thank the universe and any gods for getting me through the day and love the daily conversations with my friends far and wide that help get me through each day. Texts from my husband checking in always make my day better!

I end the day with no energy, having my husband shower with me as I tend to collapse more so in the shower and with the struggle of having to make all meals Gluten free, I feel bloated and nauseated after eating but do my best to eat. I then am so tired but suffer from insomnia so don’t sleep till 2am after tossing and turning in bed after doing my daily stretches and exercises so I’m not in too much pain to sleep.

And that’s the life I live, I aim higher each day and feel better some days and worse on others but taking each day as it comes is sooo important. Be kind to yourself and listen to what your body needs!

Please comment below if you can relate or share to someone you know that will feel less alone knowing that someone out there feels similar.

Until next time, look after yourself xoxo

TOP 5 THINGS I’VE LEARNT LIVING WITH AN INVISIBLE ILLNESS

There are many things I didn’t know until being faced with living life the way I do now so I would like to share my top 5, otherwise I could be here all night!!! Now I believe everything happens for a reason and these lessons are apart of my reasons!!!

  1. Don’t ever take your issues out on someone as you have no idea what they are dealing with behind the scenes. I don’t think I ever really have but thinking back to each time someone has even been a slight bit snappy if I’m having a hard day now the slightest comment can make me snowball downhill and I would hate to of ever made anyone feel that way. I still hide it on the inside like so many of us do, but words are so important because just a sentence can make or break someones day.
  2. I am stronger than I think! I’ve gone through so much and each time something bad happens I used to think I couldn’t handle it but now I know I’m tough. Anyone dealing with chronic illnesses are far more tougher than they give themselves credit for because each day we are fighting a war inside our bodies and each day we live through is a day we have not only achieved but we have WON that BATTLE!
  3. I am my best advocate! You are too! When I was first diagnosed I was so furious with so many doctors and the medical world as you put your faith in them and sometimes it’s for nothing. They don’t have your best interests at heart… only you do! So standing up for your self is the only way you will get the best treatment. Do your research, ask about certain medications you believe might help, if you think your diagnosis is wrong then question it, suggest what you believe because no one knows you better then you!!!! I got my POTS diagnosis within 3 days of symptoms after being sent from the doctors to hospital to home. I did my research and found POTS matched everything I was experiencing. So I went back to the doctor and suggested it and he did some tests (after he was googling it!!) and agreed! He then sent me to a specialist who then also confirmed it and told me it generally takes most patients 3-5yrs to be diagnosed!!! So speak up, don’t be afraid!
  4. Your work doesn’t define you! Not being able to work doesn’t make you less of a person, I used to answer the who are you question with my job title….A director, A real estate sales agent etc but NOW when asked I am a strong, passionate and caring women is my answer.
  5. It’s OKAY to not be OKAY!!! Gone of days now when I thought that if I was sad or tired and too exhausted that it was the end of the world and something to be ashamed of. I managed to deal with violent past traumas okay but when it came to my health because the world doesn’t share it I didn’t think I could so I suffered within myself… NOW i know its OKAY and I openly speak about it, I post awareness stories to help change the stigma when possible and it’s half the reason I’ve created this post so others know its okay and to as for help and advice! As long as you can pick yourself up when needed and keep up the good fight because you will WIN! You will win no matter how long you live if you keep fighting every day so you have no regrets!

These are my top 5 lessons, the top 5 things that have made me be the best me! Leave your comments on the lessons your illness has taught you to make you the strong man/woman you are today!

Tips & Tricks

Getting a handle on life with an invisible illness can be tricky at first, and well every day after that to be honest… So I thought to make it easier for those of you recently diagnosed, wanting to learn new tips or remember some basics I thought I would share my tips & tricks on daily living! So here goes and please feel free to comment any of your tips, tricks and hacks below so we can build each other up together!

  1. Set your daily plan, each morning!!! Weekly simply won’t work as each day is different, plan half a day at a time. How many spoons are you planning to use today and what on?
  2. Meal prep on your good days, baking and slow cookers are best 3-4 meals are best so you don’t get bored of each meal.
  3. Buy and take a collapsible walking stick with you on outings! Great on public transport if there’s no seats, makes our invisible illness, less invisible!
  4. Water!! water is your friend, if you don’t like water, add sports drink powders or lemon/lime/oranges/strawberries/watermelon etc as being hydrated will be a huge symptom relief. TYPO has really adorable 2ltr drink bottle with a pop top (pop tops for some reason make me feel less bloated when I drink water, no idea why?)
  5. Sleep… your body needs it, although we feel like we have not done much to be tired… A war is going on inside our bodies, causing it to be exhausted quite often, so if you can nap when possible
  6. HELP! Get help when you need it, do not put your pride first. It took me a while to be able to ask for help, help getting to appointments, help cleaning etc you name it if you need help ask a family member or friend or hire someone. Its not worth going down hill to get something done!
  7. Get a doctor on email! One of the many doctors you visit should be easy going enough to allow email contact. Someone who knows your medical history who you’ve seen regularly. I say email because if you have brain fog like me, you forget why you even booked the appointment, when you booked it, forget to talk about specific problems or it doesnt come out the right way when your trying to explain it or something new happens and because you cant see the DR for a few days you GOOGLE your symptoms and stress 10 x more!!! So it’s best to have a DR on email so you can word it the way you need to, email when needed and get answers sooner!
  8. LISTS: Create a list of things you WANT to do with your time, if you were to die tomorrow what would you regret… Seeing friends and family more? enjoying outdoors? you name it! PUT it on your list and do it! Have lists of activities you enjoy that you can do at your best and ones at your worst! Puzzles, crafts, drawing… options are endless. I will have a blog on that soon.

There is my top 8 tips & tricks. comment yours bellow! I hope this helped!

My First Blog Post

INVISIBLE BUT STRONG!

HOW I FIND STRENGTH FROM MY INVISIBLE ILLNESSES

Be yourself; Everyone else is already taken.

ā€” Oscar Wilde.

This is the first post on my new blog. Iā€™m just getting this new blog going, so stay tuned for more. Subscribe below to get notified when I post new updates. In this Blog, I want to explain why I feel like my illness has made me better in so many ways!

To understand me you need to know my biggest belief “EVERYTHING HAPPENS FOR A REASON!!!!!!!” it is that belief alone that has tought me that for everything I go through, teaches me a lesson I need to know for the next event in my life. I truly believe that if I hadn’t ended up with these illnesses, had the past I’ve had and lived the life I have that I wouldn’t be the same person TODAY as I am. I wouldn’t be in the position to help others, I wouldn’t be strong enough of handle the challenges I’m currently faced with.

I hope through my blogs, emails and support that you too, will be able to face your challenges with strength, courage and knowledge that YOU are NOT ALONE!!!!

MY ILLNESSES & ME

Hi, I’m Tiahana I live with an invisible illness… well quite a fair few! Where to start… I have:

POTS: My heart rate goes through the roof when I stand up, among other fun symptoms

COSTOCHONDRITIS (replicates the feelings of having a heart attack… FUN.. NOT!)

ENDOMETRIOSIS: Infertility We’ve been trying for our first for 4yrs, oh and LOTS of PAIN!

HYPERMOBILITY SYNDROME: Extra flexible = more strains, sprains and dislocations!

MIGRAINES: Pain, pain oh and the vommiting! EXTRA FUN in BRIGHT LIGHTS! (NOT)

ASTHMA: Definitely not fun with the country on fire!

SILENT SEIZURES: Still being diagnosed, slowing in the brain showed on last EEG.

COELIAC DISEASE: No gluten šŸ˜¦ Thankfully I’ve found lots of great GF recipes to share!

NEW DIAGNOSIS’S AS OF JANUARY 2020

ADENOMYOSIS – Abdominal cramping and infertility

POLYCYSTIC OVARIES – More abdominal pain and heavy periods, infertility as I have 22 follicles on the left ovary and 20 on the right

CARPAL TUNNEL – Tingling in the hands and arms with cramping, dead arms if i lift above my head!

STRESS – Apparently its causing my seizures, abdominal pain and infertility even withthe above diagnosis its the stress causing the cramps not the diagnosis’s themselves !!!! Seriously… some doctors!!!!

So Just a few things my body has going on, I’m sure I’ve still missed something due to the life of BRAIN FOG and daily PAIN.. which I’m sure I’m not alone with and that you suffer too, which may be what has led you here… or you know someone else living this crazy life

I’m here to help you understand your not alone and share everything I have learnt.. one blog at a time. If there is anything in particular your curious about send a message and I will respond or post a blog on that topic!

Feel free to check out the page, comment and email your questions and feedback and together we can be strong!

#invisiblebutstrong #Invisibleillness #StayStrong #zerotohero #YouAreNotAlone